A Family’s Journey with Type 1 Diabetes and Insulin Access

My son was diagnosed with type 1 diabetes in 2024. Initially, his endocrinologist believed he had type 2 diabetes, but after additional testing, they called us back to let us know he actually had type 1 diabetes.

We immediately began diabetes education and started by closely monitoring his blood sugar levels. At first, monitoring alone was enough to help manage his condition. Eventually, however, his blood sugar became more difficult to control, and he was prescribed insulin.

The cost of insulin was a huge shock to me, and I was incredibly grateful to have health insurance at the time. Unfortunately, there came a period when I was unemployed and no longer had insurance, which meant the cost of insulin came directly out of my pocket. I was fortunate to qualify for a patient assistance program that covered his insulin for six months, but I often think about what would have happened if that program had not been available. No parent should have to worry about whether they can afford the medication their child needs to stay alive.

Today, my son is doing well. Like many teenagers, he sometimes gets frustrated with having to check his blood sugar and take insulin when his friends don't have to think about those things. Even so, he has remained committed to managing his diabetes, and I am incredibly proud of him. We have not experienced any diabetes-related emergencies or hospitalizations, and for that, I am truly grateful.

Our family's journey has shown me both the emotional and financial challenges that come with living with type 1 diabetes. It has also taught us resilience, the importance of education, and the value of having access to affordable healthcare and lifesaving medications.